• Being Me with IBD: It’s pants to talk about poo

    In this blog, we reflect on how we worked with illustrators to run a creative and interactive Being Me with IBD engagement activity at Alder Hey Children’s Hospital. Alder Hey Children’s Hospital has been an active partner in the Being Me with IBD study and with a large and busy atrium space it made the perfect venue for an activity to […]

  • Being Me with IBD: The role and impact of the e-advisory group

    In this blog, we are looking at the role, impact and influence the young person’s e-advisory group on the Being Me with IBD study. What is a young person’s e-advisory group? The Being Me with IBD study has been guided throughout by an e-advisory group of ten young people. These young people are aged 15-26 year old and […]

  • Being Me with IBD: What do parents think and feel?

    In this blog we talk about how the Being Me with IBD study has opened and facilitated informal discussion with the parents of young people living with IBD and the importance of listening to their stories and experiences. The Being Me with IBD study focused on exploring the experiences and perspectives of young people with the condition. So often […]

  • Being Me with IBD: The interrupted interview

    This blog post focus on the challenges of conducting the Being Me with IBD interviews in busy and distracting clinical environments and how we ensure sensitivity to the young participants. As discussed in our previous blog post we are conducting qualitative interviews with young people in a hospital clinic or a day unit about their […]

  • Being Me with IBD: Using creative methods in a clinical setting

    In this blog we focus on how the Being Me with IBD study is drawing on a range of data collection methods and techniques in line with its participatory approach and underpinned by values of person-centredness. The quantitative approach There are two distinct but complementary data collection phases to the Being Me with IBD study. Phase […]

  • Being Me with IBD:  Spreading the word

    In this blog post we talk about how disseminating the ideas, progress, and findings of the Being Me with IBD study is something we’re thinking about all the time. Disseminating as we go Research is undertaken to find things out. However, although finding things out can be valuable it isn’t particularly helpful unless the researchers […]

  • Being Me with IBD:  Mental health and IBD

    This blog reflects some of the reasons we wanted to undertake the Being Me with IBD study to explore the impact of IBD’s on young people’s friendship, loneliness and mental health. It also reflects our contribution to Children’s Mental Health Week 4th – 10th February 2019 and the recognition of how physical ill-health can impact on […]

  • Being Me with IBD:  The genesis of the study

    In the second of our blogs we talk about the values underpinning the Being Me with IBD study and why we think these are important. What we value shapes our research The Being Me with IBD study is based on the values of participation, sensitivity, curiosity, person-centredness, respect, and collaboration. Those values shape how we have […]